ANNUAL REPORT 2023 DESIDERATA

PT EN
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Introduction

When we systematize the activities carried out over the course of one year, we can clearly understand the dimension of our work. And after 20 years of experience, we perceive the impact achieved for the health of Brazilian children and adolescents throughout this journey. Therefore, this report is of great importance, to celebrate our public recognition, solidity, and consistency.

In August, we brought together partners and collaborators so we could celebrate this journey. At Desiderata’s 20th anniversary,we held talks and debates about the paths we have followed to strengthen the healthcare of children and adolescents and about the challenges and achievements of public health for Brazilian children and adolescents.

To rise to the new challenges, considering the state of affairs in our country, we collectively devised our Policy for the Promotion of Diversity and Racial Equality, rendering our commitment to this agenda official and public. The formulation of this policy was key to gaining further insight into our programmatic action and meeting the different needs, realities, and perspectives with which we work.

In pediatric oncology, 2023 meant the consolidation of our efforts directed at the northeastern region. We keep on making remarkable developments in the State of Pernambuco, forging important partnerships between civil society and the public sector to promote the early diagnosis of childhood cancer in that state, inspired by our experience with Unidos Pela Cura in Rio de Janeiro.

At the end of the year, we inaugurated two humanized pediatric wards, each with eight hospital beds at Jesus Municipal Hospital, in the Vila Isabel neighborhood, in the northern zone of Rio de Janeiro. Humanized environments such as these contribute to reducing pain and anxiety of patients seen there, and they also motivate and ensure greater satisfaction of health professionals with their work environment. Having an appropriate and welcoming environment for treatment and work are among the tenets of the National Policy for Humanization, and no effort has been spared to make that happen.

In regard to Childhood and Adolescent Obesity, our advocacy actions and campaigns were paramount in mobilizing the civil society and put pressure on the legislative branch for the approval of bills that forbid the supply of ultraprocessed foods and drinks at schools in Rio de Janeiro (PL 1662/19) and Niterói (PL 40/2023). Healthier eating environments are a major achievement, promoting easier access of Brazilian children and adolescents to healthy and appropriate nutrition.

These movements and results made throughout 2023, among many others, demonstrate that we have been following the path towards strengthening public health and generating a positive impact on the lives of Brazilian children and adolescents and of their families, and we have advanced and expanded our work across other Brazilian regions.

We hope that all the figures and records in this Annual Report will help you better understand the scope of our historic and unwearied diligence.

Enjoy the reading!

Mark Essle and Renata Couto
President of the Board of Directors and Executive Director

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About Desiderata

The Desiderata Institute is a non-profit organization founded in Rio de Janeiro in 2003 with the aim of providing children and adolescents with a healthier life through the early diagnosis and improved treatment of cancer and prevention and care of childhood and adolescent obesity.

We promote integrated solutions to the strengthening of child public health through actions that foster public policies focused on childhood and adolescent cancer, including advocacy actions in the legislative and executive branches, awareness campaigns, training of healthcare workers, humanization of care in public hospitals, mobilization efforts, coordination, and partnerships with the public and private sectors and with the civil society.

Our mission

To provide solutions that ensure the timely prevention, diagnosis, and treatment regarding the health of children and adolescents.

Our dream

To have Brazilian children and adolescents among the healthiest ones in the world.

Desiderata works according to the following sustainable development goals established by the UN:

ODS 2 ODS 3 ODS 10 ODS 17

Communication and Public Engagement 

As a strategic axis for the Desiderata Institute, our communication supports the strategies in programmatic areas and creates contents and campaigns that underscore and broaden the importance of guaranteeing that Brazilian children and adolescents will have the right to health.

Our aim is to establish the health of children and adolescents as a priority on the national agenda for public policy-making and public debate. The Communication area also contributes to strengthening the link with partners and donors, as an attempt to enhance organizational development actions and resource mobilization efforts.

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Events

Desiderata’s 20th anniversary

For our 20th anniversary, we held a very special event to celebrate and reflect on the challenges and achievements of public health for Brazilian children and adolescents.

The event took place on August 3, at the Rio Othon Palace hotel, in Copacabana, Rio de Janeiro. We had around 200 guests, partners who have contributed and still contribute to our trajectory: public managers, health professionals, counselors, collaborators, funders, and representatives of other civil society organizations.

It was a day filled with celebration and content. We discussed issues that have been part of our collective work towards improving the public health of children and adolescents, including:

  • The importance of public health policy for children: achievements and challenges
  • Advocacy as a tool for guaranteeing rights
  • The role of information in the formulation of public policies for child health
  • Adolescents, how to reach and care for them?
  • Paths followed by Desiderata to strengthen the healthcare of children and adolescents

Desiderata Institute, 20 years building paths for healthier childhoods.

Watch the video below!

Desiderata’s 20th anniversary Event
Thais Castro
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Campaigns

Golden September

The “One Look Changes Everything” campaign sought to raise the awareness of primary healthcare workers in Rio de Janeiro and in Pernambuco about the importance of Early Diagnosis of Childhood Cancer.

Online reach: 605,401 people
315,517 in Pernambuco; 289,884 in Rio de Janeiro
805,019 engagements
Offline reach: 56 kits containing a handbag, T-shirt, and buttons handed out to partners for campaign promotion.

Healthy nutrition at schools

Campaign to raise awareness of the school community in Rio de Janeiro and Niterói about adequate and healthy nutrition, with announcement of Bill 1662/2019 (Rio de Janeiro) and Local Act 3766/2023 (Niterói), which regulate the supply of ultraprocessed foods and sugary drinks to public and private schools.

4,316,361 people: 2,435,281 in Niterói; 1,881,080 in Rio de Janeiro 4,316,361 people: 2,435,281 in Niterói; 1,881,080 in Rio de Janeiro
Equipe Desiderata na votação do PL 1662_2019
Votação PL 1662_2019
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Conferences and Events

Lancet Summit - Childhood obesity: consequences across the life course | Online

  • Panel on “Community-driven solutions from around the world and youth engagement” with presentation of “Building a comprehensive approach for childhood obesity in Niterói city, Rio de Janeiro - an experience report”

Conference on Human Formation and Public Health: celebrating 100 years of SOBRAHSP | Niterói, RJ

  • Conception and coordination of the roundtable entitled "How to prevent childhood obesity?”

Accelerating the removal of ultra-processed products from Caribbean schools | Bridgetown, Barbados

  • Presentation of the advocacy experience in the approval of Bill 1662/2019 in Rio de Janeiro at the regional meeting organized by the Healthy Caribbean Coalition (HCC), with support from the Pan-American Health Organization (PAHO) and from the Global Health Advocacy Incubator (GHAI)

XXIII Conference on Food and Nutrition in Public Health of the State of Rio de Janeiro

  • Presentation entitled “Diagnosis of nutritional status as a tool for management and scientific production”

9th Brazilian Conference on Social and Human Sciences in Health organized by Abrasco | Recife, PE

  • Presentation entitled “Qualification of PHC professionals in the state of Rio de Janeiro in terms of race and gender oppression in the context of child and adolescent obesity”
  • Presentation entitled “Regulation of the school food environment and the conservative reaction: an analysis of the discussion on Bill 4.198/2021 in the Legislative Assembly of Rio de Janeiro”
  • Presentation entitled “Disinformation and lobbying: industry interference in the processing of Bill 1662/2019 in Rio’s legislative branch”

Towards achieving UHC: Second Multistakeholder Gathering on Tackling Noncommunicable Diseases | Online

  • Presentation entitled “Brazil: Tackling childhood obesity through multisectoral action” (link) in the panel “Partnerships for enhancing impact: government and civil society organizations”

18th Brazilian Conference and 34th Latin American Conference on Pediatric Oncology | Florianópolis, SC

  • Participation in the organization of the conference
  • Speaker in the nursing roundtable entitled “Early Diagnosis”
  • Mediation of the roundtable “Childhood and Adolescent Cancer and Equity in Brazil and Latin America”

International Conference on Children with Complex Health Disorders | Online

  • Presentation entitled “Unidos pela Cura Guide: an instrument to strengthen public policies for early diagnosis of cancer in children and adolescents”
  • Presentation entitled “Humanization of care in Pediatric Oncology: impacts of the remodeling of public hospitals interior design in Rio de Janeiro”

22nd Meeting of the Brazilian Association of Cancer Registries | Rio de Janeiro, RJ

  • Presentation of the Panorama of Pediatric Oncology in Brazil, at the table entitled Cancer Epidemiology Based on Registries
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Desiderata in the mass media

155 media insertions
infographic

Our social networks

Growth in number of followers and engagement:

44.62% Instagram
50.2% LinkedIn
1.9% Facebook
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Partnerships

The Desiderata Institute receives donations from individuals and legal entities (foundations and companies), important partnerships that provide financial support, technical assistance, and service delivery, because they believe in public health as a fundamental principle for the development of children and adolescents.

New partnerships were forged in 2023 to improve early diagnosis of childhood cancer in Pernambuco: Raia Drogasil, St. Jude Children's Research Hospital, and My Child Matters by Foundation S.

The addition of new funders underscores the importance and potential of the partnerships forged by Desiderata.

Our heartfelt gratitude to all our partners and donors!

Financial partners:

Bloomberg
Global Health
Umane
Chevron
Raia Drogasil
My Child Matters
St. Jude Global
Fundação José Luiz Egydio Setúbal
Fundo Rogério Jonas Zylbersztajn
Órama Investimentos

Service partners:

Araguaia
Medweb
RGR
BMA
Be part of our history! Donate here and contribute to healthier childhoods!

Financial statements pdf

Revenues

Revenues: 3% Natural persons - small and medium-sized donations, 8% Investiment, 11% Brazilian foundations, 13% Legal entities - companies - Empresas, 30% International foundations, 35% Natural persons - large donations

Expenditures

Expenditures: 31% Obesity, 9% Fundraising, 15% Communication, 11% Management, 34% Pediatric oncology. *Despesas de RH estão consideradas no valor de cada área.
*Human resources expenses are included in the value of each area.
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Policy for the Promotion of Diversity and Racial Equality

Acknowledging that people have different backgrounds, profiles, and experiences and that they bring with them a wide array of connections, knowledge, and skills that are valuable for the promotion of efficient and innovative solutions, Desiderata has formulated its Policy for the Promotion of Diversity and Racial Equality.

Diversity can lead to a deeper insight into the needs for action of a social organization and thus ensure that actions will meet different needs, realities, and perspectives with which we work.

Desiderata’s policy for the promotion of diversity and racial equality asserts our institutional commitment to the promotion of diversity, focusing on racial equality, given the significance of this population group in Brazil.

This policy results from a collective effort put in by the members from different areas of Desiderata’s team. The project involved three sequential stages: racial literacy; diagnosis; and establishment of goals and strategies. Our commitments, goals, and strategies are hinged upon the promotion of racial equality and put into practice our mission of offering solutions that ensure timely prevention, diagnosis, and treatment regarding the health of children and adolescents in Brazil, a country that is rife with huge social inequalities related to the access to health services and to other rights.

Specific objectives:

  • To develop recruitment and selection processes in line with the principles of diversity and racial equality so as to fight racism and unconscious biases, mainly in regard to the opportunities given to black people, thereby minimizing their impact when planning selection criteria;
  • To align the professional development policy and career plan of the Desiderata Institute with the proposed Policy for the Promotion of Diversity and Racial Equation;
  • To Consider diversity and racial equality as the fundamental principle for all actions developed by the Desiderata Institute;
  • To ensure compliance with the commitments established in the Action Plan of this policy;
  • To strengthen and expand the intersectional approach to race and other markers of inequality in Desiderata’s programmatic work to ensure the fulfillment of its mission.

Our team’s diversity profile:

As part of our new policy, we present the profile of our team in 2023 to follow up our goals closely in terms of racial equality.

Self-declared race/ethnicity
29.2 black; 33.3 mixed; 37.5 white
Do you see yourself as part of the target audience of an affirmative action policy?
62.5 yes; 37.5 no
Instituto Desiderata's team

Who has been part of our history

Executive Director
  • Renata Couto
Healthcare
  • Carolina Motta – Oncology Manager
  • Claudia Bezerra – Project Coordinator – Oncology (up to November 2023)
  • Thais Vidal – Project Consultant – Oncology
  • Amanda Nunes Batista – Health Analyst – Oncology
  • Andressa Alves – Unidos Pela Cura Consultant - Pernambuco

  • Raphael Barreto – Obesity Manager
  • Carolina Rocha – Health Analyst – Obesity
  • Fabíola Leal – Advocacy Analyst – Obesity
  • Veronica Freitas – Advocacy Consultant – Obesity
  • Phillipe Rodrigues – Patient Healthcare Trajectory Project Consultant – Obesity
  • Hugo Marques – Patient Healthcare Trajectory Project Consultant – Obesity (up to March 2023)
  • Ísis Botelho – Online Learning Project Consultant – Obesity (up to March 2023)
  • Olívia Honório – Health Consultant – Obesity
  • Tamires Vieira – Project Consultant – Obesity
  • Milena Santos da Silva – Community Mobilization Consultant – Obesity
  • Camille Correia – Online Learning Consultant – Obesity

  • Vinicios Oliveira – Online Learning Consultant – Obesity and Oncology
  • Michele Costa – Health Data Analyst – Obesity and Oncology
Communications
  • Anna Carolina Cardoso – Communications Manager (up to December 2023)
  • Igor Simões – Communications Assistant
  • Ana Carolina Malvão – Communications Analyst
  • Tamires Menezes – Digital Strategy Consultant
  • Gabriella Costa – Campaign Consultant – Obesity (up to July 2023)
  • Fernanda Quevêdo – Campaign Consultant – Obesity
Organizational Development
  • Luiza Rudge – Director of Organizational Development
  • Lana Bauab – Organizational Development Analyst
Administration and Finance
  • Carolina Miranda Dorneles – Administrative-Financial Manager
  • Thaís Melo – Administrative Assistant
  • Ilka Guedes – Budget Planning and Control Consultant
Board of Directors
  • Mark Essle – President
  • Guilherme Frering
  • Antonia Frering
  • Arminio Fraga
  • Gabriela Paranhos
  • Germana Lyra Bähr
  • Guilherme Teixeira Azevedo
  • Maria Auxiliadora Gomes
Advisory Board
  • Beatriz Cardoso
  • Heloisa Helena Oliveira
  • Luciano Huck
  • Paula Guedes
  • Rafael Gomes Martinez
  • Rodrigo Capistrano
  • Sergio Bermudes
  • Wanda Engel
Audit Committee
  • Eduardo Poggi
  • Maria Fernanda Dias de Carvalho
  • Miguel Ramos de Carvalho