Founded 16 years ago, Instituto Desiderata is an OSCIP (Civil Society Organization of Public Interest) with an innovative history of joint action with public managers and organizations in the development and implementation of solutions for prevention, diagnosis, and care for the health of children and adolescents. For this, it promotes actions of mobilization and articulation between the public sector and civil society, the training of health professionals for early diagnosis, humanization of treatment, and production and dissemination of knowledge in the field.
Since its beginning, Desiderata works to change the reality of childhood cancer in Rio de Janeiro. In 2019, it expands its commitment and actions to other Chronic Non-Communicable Diseases (CNCDs) and risk factors, such as childhood obesity.
CNCDs are the leading causes of death in the world, and generate a loss in quality of life, as well as economic impacts on families, communities, and society at large.
Instituto Desiderata’s work aligns itself with the plan of action of the United Nations’ (UN) global agenda, formed by the 17 Sustainable Development Goals (SDGs), taken on by countries as a global commitment to a sustainable and better world for people everywhere. Our actions mainly aim to meet goal 3.4 of the SDGs: "by 2030, reduce by one third premature mortality from non-communicable diseases through prevention and treatment and promote mental health and well-being."
Promote solutions that ensure prevention, diagnosis, and timely care for the health of children and adolescents.
Brazilian children and adolescents among the healthiest in the world.
To improve the lives of children and adolescents we work collectively and make things happen. This is how we started a story of transformation.
Where one sees complex and insoluble health challenges, we see the opportunity to make a difference. We map the problems, identify who and how. We join individuals and institutions to search for solutions, producing social changes in the collective interest.
Articulate to approximate to mobilize to engage to solve to transform causes projects dreams lives.
Instituto Desiderata is founded with two areas of operation: education and pediatric oncology.
Studies, visits, and workshops point to early diagnosis as key to improving the treatment of childhood cancer in the public healthcare network of Rio de Janeiro.
Creation of the program “Being Capable” to support nine projects of NGOs working with after-school activities.
Launch of the United for the Cure initiative. Donation of ultrasound device to the Hospital Municipal Jesus.
Launch of the study “Childhood and Youth in Rio de Janeiro”.
Playful transformation of child chemotherapy rooms and hospital beds for teenagers .
Beginning of the training of doctors to identify signs and symptoms of cancer, and the referral of suspected cases through United for the Cure.
Program “Partnerships for Education”: five projects in partnership with public schools.
United for the Cure becomes a public policy for the promotion of early diagnosis in the city of Rio de Janeiro. Extension of training for all professionals in the Family Health Strategy.
The education area focuses on Middle School and conducts the participatory survey “Megaphone in School” (link to PDF) to understand the education of adolescents in the public school system.
1st Pediatric Oncology Forum (FOP). Donation and transformation of a tomograph for pediatric care at the Hospital Municipal Jesus.
Desiderata receives the Pedro Ernesto Merit Medal for its efforts in Pediatric Oncology.
Organization of working groups with teachers and public managers to discuss and propose actions for the education of adolescents.
Inauguration of the Carioca Aquarium at Hemorio.
Launch of the 1st Panorama of Pediatric Oncology of the state of Rio de Janeiro. Launch of the first Letter of Recommendations at the 2nd Pediatric Oncology Forum, with proposals for actions and monitoring in pediatric oncology.
Launch of two online platforms: Latitude, with georeferenced educational indicators; and Prisma, to disseminate knowledge and practices about adolescents and media education.
3rd Pediatric Oncology Forum. Launch of handbook for the caregivers of children with cancer
Expansion of training of health professionals to four other municipalities in Rio de Janeiro.
Beginning of the Education Network with Adolescents (RECA), formed by teachers, students, and social organizations to propose public policies for education that are specific to this group.
4th Pediatric Oncology Forum.
Desiderata becomes a member of the Union for International Cancer Control (UICC)
Closure of the education area in a seminar with the municipal secretary of education.
Desiderata reinforces its commitment to pediatric oncology and extends its actions to other chronic non-communicable diseases and risk factors, such as childhood obesity.
Desiderata is recognized as one of the 100 best NGOs in Brazil by Época Magazine and Instituto Doar.
Heloisa H Oliveira
Rafael G Martinez
Maria Fernanda Carvalho
Roberta Costa Marques
Master of Applied Economics from USP, Postgraduate in Education and Inclusion from PUC-Rio, and Management Specialist from the Kellogg School of Management at Northwestern University. She has always acted as an administrator in social organizations. In 2017 she was elected a Young Leader of the Union for International Cancer Control (UICC).
Administrator specialized in sustainability, always acting in the management of third sector organizations involved in education, culture, social assistance, sports, and health projects.
Health Area Manager
Master of Social Service from PUC-Rio, and specialist in Healthcare Management from Fundação Dom Cabral. She has worked in the social area for more than 15 years, her areas of knowledge and interest are public healthcare policies and social assistance.
Institutional Development Manager
Postgraduate in Marketing from Universidade Católica do Rio (PUC-Rio). She worked for more than 10 years with Communication and Marketing in large companies and agencies, as well as with customer relations and project management. She migrated to the third sector seeking to unite her personal values and professional life.
Postgraduate in Journalism from the International Agency (Univ. Juan Carlos/ Agencia EFE – Madrid), she is a Journalist (UFRJ), a Bachelor of Law (UERJ), and is passionate about connecting people and worlds. After 15 years of activity in media, agencies, and companies, she has decided to resignify her story and embrace working with cancer.
Bachelor of Data Processing Technology and Postgraduate in UX Design / Information Architecture. Experience in IT project management, and 10 years working in projects related to the healthcare area.
Health Area Analyst
Master of Food, Nutrition, and Health (UERJ), resident in Public Healthcare (UFRJ), and specialist in Promotion of Health and Social Development (ENSP/FIOCRUZ). She has more than 5 years of experience in the evaluation of public healthcare services and policies, and in applied epidemiology, with an interest in chronic or neglected diseases.
Master of Food, Nutrition and Health (UERJ), and specialist in Public Healthcare (ENSP/ FIOCRUZ). She has been researching Food and Nutrition Security and Chronic Diseases for 10 years. She had different responsibilities at the SUS, these included healthcare training, and more recently the management of Primary Care in the state of Rio de Janeiro.
Luisa De Biase
Bachelor of Economics from PUC-Rio, she worked at private schools and as a teacher in community pre-college courses. She entered the third sector in order to work for the causes she believes in.
Specialist in Primary Care Management and Public Healthcare Resident at ENSP/ Fiocruz. Bachelor of Psychology from PUC-Rio. During the last five years she worked in the Rio de Janeiro State Health Department, as well as with public healthcare management. She seeks to develop projects focused on strengthening the SUS.