Who are we?

Founded 16 years ago, Instituto Desiderata is an OSCIP (Civil Society Organization of Public Interest) with an innovative history of joint action with public managers and organizations in the development and implementation of solutions for prevention, diagnosis, and care for the health of children and adolescents. For this, it promotes actions of mobilization and articulation between the public sector and civil society, the training of health professionals for early diagnosis, humanization of treatment, and production and dissemination of knowledge in the field.

Since its beginning, Desiderata works to change the reality of childhood cancer in Rio de Janeiro. In 2019, it expands its commitment and actions to other Chronic Non-Communicable Diseases (CNCDs) and risk factors, such as childhood obesity.

CNCDs are the leading causes of death in the world, and generate a loss in quality of life, as well as economic impacts on families, communities, and society at large.

Instituto Desiderata’s work aligns itself with the plan of action of the United Nations’ (UN) global agenda, formed by the 17 Sustainable Development Goals (SDGs), taken on by countries as a global commitment to a sustainable and better world for people everywhere. Our actions mainly aim to meet goal 3.4 of the SDGs: "by 2030, reduce by one third premature mortality from non-communicable diseases through prevention and treatment and promote mental health and well-being."

Our mission

Promote solutions that ensure prevention, diagnosis, and timely care for the health of children and adolescents.

Our dream

Brazilian children and adolescents among the healthiest in the world.

Manifesto

To improve the lives of children and adolescents we work collectively and make things happen. This is how we started a story of transformation.

Where one sees complex and insoluble health challenges, we see the opportunity to make a difference. We map the problems, identify who and how. We join individuals and institutions to search for solutions, producing social changes in the collective interest.

Articulate to approximate to mobilize to engage to solve to transform causes projects dreams lives.

Timeline

Board

Deliberative Board

Guilherme Frering

Antonia Frering

Arminio Fraga

Consulting Board

Beatriz Cardoso

Heloisa H Oliveira

Luciano Huck

Marcos Moraes

Paula Guedes

Rafael G Martinez

Rodrigo Capistrano

Sergio Bermudes

Wanda Engel

Fiscal Board

Joaquim Dias

Eduardo Poggi

Maria Fernanda Carvalho

Our Team

Roberta Costa Marques

Executive Director

Master of Applied Economics from USP, Postgraduate in Education and Inclusion from PUC-Rio, and Management Specialist from the Kellogg School of Management at Northwestern University. She has always acted as an administrator in social organizations. In 2017 she was elected a Young Leader of the Union for International Cancer Control (UICC).

Natália Carcione

Administrative Manager

Administrator specialized in sustainability, always acting in the management of third sector organizations involved in education, culture, social assistance, sports, and health projects.

Laurenice Pires

Health Area Manager

Master of Social Service from PUC-Rio, and specialist in Healthcare Management from Fundação Dom Cabral. She has worked in the social area for more than 15 years, her areas of knowledge and interest are public healthcare policies and social assistance.

Luiza Rudge

Institutional Development Manager

Postgraduate in Marketing from Universidade Católica do Rio (PUC-Rio). She worked for more than 10 years with Communication and Marketing in large companies and agencies, as well as with customer relations and project management. She migrated to the third sector seeking to unite her personal values and professional life.

Fábia Andérez

Communication Manager

Postgraduate in Journalism from the International Agency (Univ. Juan Carlos/ Agencia EFE – Madrid), she is a Journalist (UFRJ), a Bachelor of Law (UERJ), and is passionate about connecting people and worlds. After 15 years of activity in media, agencies, and companies, she has decided to resignify her story and embrace working with cancer.

Claudia Bezerra

Project Coordinator

Bachelor of Data Processing Technology and Postgraduate in UX Design / Information Architecture. Experience in IT project management, and 10 years working in projects related to the healthcare area.

Evelyn Kowalczyk

Health Area Analyst

Master of Food, Nutrition, and Health (UERJ), resident in Public Healthcare (UFRJ), and specialist in Promotion of Health and Social Development (ENSP/FIOCRUZ). She has more than 5 years of experience in the evaluation of public healthcare services and policies, and in applied epidemiology, with an interest in chronic or neglected diseases.

Elisa Proença

Project Analyst

Master of Food, Nutrition and Health (UERJ), and specialist in Public Healthcare (ENSP/ FIOCRUZ). She has been researching Food and Nutrition Security and Chronic Diseases for 10 years. She had different responsibilities at the SUS, these included healthcare training, and more recently the management of Primary Care in the state of Rio de Janeiro.

Luisa De Biase

Administrative Assistant

Bachelor of Economics from PUC-Rio, she worked at private schools and as a teacher in community pre-college courses. She entered the third sector in order to work for the causes she believes in.

Carolina Motta

Project Analyst

Specialist in Primary Care Management and Public Healthcare Resident at ENSP/ Fiocruz. Bachelor of Psychology from PUC-Rio. During the last five years she worked in the Rio de Janeiro State Health Department, as well as with public healthcare management. She seeks to develop projects focused on strengthening the SUS.

Partners